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I was stopped in my tracks by the sight of him, completely unprepared
for an encounter with what appeared to be a skeleton lying on the bed.
So wasted was this poor body that it barely made a lump under the blankets.
So emaciated was the face that it seemed little more than a skull with
skin stretched across it. The eyes were closed, and the breathing so shallow
that the chest barely moved. But most disconcerting was the skin. It had
turned such a deep mahogany that it made its owner look for all the world
like bones carved from wood.
Marionel had AIDS.
He was the first person with AIDS with whom I’d ever come in contact,
and I was terrified of him. Of course I knew that his illness posed absolutely
no threat to me. But that didn’t keep a large lump of fear from
forming in my throat. Just then I heard Cheryl, his nurse, announce with
her usual cheerful confidence that “we” were going to turn
Marionel. So, swallowing the lump, I donned gloves from the “special
procedures” tray outside his door, smiling bravely and hoping my
face did not betray what I was feeling inside.
One.... two.... on three, we lifted. Marionel
weighed nothing! I held him gingerly, balancing his body as Cheryl rubbed
his back with lotion and talked soothingly to him. His eyes opened a crack.
Only one small moan escaped his lips as we settled him back.
I thought to myself that I would never cease
to be amazed at the remarkable reserves of the human body. Since coming
to VITAS, I had witnessed people in what I thought had been unimaginable
stages of dying, but this was ten times worse than anything I had seen.
It seemed impossible that he could muster the strength even to draw a
breath. I thought he would die while we were turning him - or at least
soon after. But Marionel kept breathing.
Talking with his relatives, I learned that Marionel
was 23 years old, the youngest of eight children. As the baby, he was
the cherished jewel of his wonderful Filipino family. Marionel was to
have been the family’s doctor, they said. He contracted AIDS in
the lab at the medical school. That this boy was well-loved, there was
no doubt. A crowd of his young friends and his many relatives constantly
filled his room, spilling out into the hall and lounge. They came from
halfway around the world to be with him. And as each new person arrived,
Marionel smiled.
I left that night filled with an overwhelming
sadness that this bright young light would be snuffed out so soon. I shuddered
at the thought of what he must have endured so far, and felt relief that
his struggle was almost over. I assumed he would die that night. But Marionel
did not die. In fact, next week when I arrived, there he was - sitting
in a chair, watching TV! I could barely believe it. He looked like some
medical student’s idea of a sick joke, gowned and propped in the
recliner. But he was smiling and talking, and that day he received his
usual steady troupe of well-wishers.
I knew that last-minute rallies were not rare
in patients so close to death. I assumed that was what I was seeing, and
I was sure he would die within the next day or two. But again, I was wrong.
In all, Marionel lived about six weeks
on the unit. He eventually lost consciousness and slipped away peacefully
one morning. In the years since, I have seen a number of AIDS patients,
both young and old. But I have never forgotten that first, jarring sight
of Marionel - nor any of the time I spent with him. I think often of that
valiant young heart, whose strength kept his body alive long past any
reasonable expectation. But mostly I remember his smile, as he greeted
a friend, a loved one.... or as he showed his appreciation to a once frightened,
but now stronger, VITAS volunteer.
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